Parent Support Group meets Jan 2; 5:30pm-6:30pm

 

Interested in joining our Parent Support Group? Please contact Eileen Shaffer at: eshaffer@paxtoncampus.org

Are you the parent or caretaker of a child with a disability or special needs?  Do you wish you could talk with other parents who are in similar situations? Please consider joining our Parent Support Group!

Parent Support Group will meet the first Tuesday of each month of the School Year and coincide with Social Skills Group. While your child attends Social Skills Group, you are welcome to join a network of other parents. PLEASE NOTE: Your child does not need to be enrolled in Social Skills to attend.

Upcoming meetings: 

Tuesdays from 5:30pm to 6:30pm

October 3

November 7

December 5

January 2

February 6

March 6

April 3

May 1

Parent groups can serve many purposes, but one of their most important can be to introduce families to others like themselves, building a sense of community and of understanding. 

For more information on this group, please contact Eileen Shaffer at: eshaffer@paxtoncampus.org

iCanBike Camp 2018- June 25th-29th

The Arc of Loudoun at Paxton Campus has partnered with Tuscarora’s Husky Buddies Program to present iCanBike Camp! This is a program offered to help people with disabilities learn to ride a two-wheel bicycle independently.

 

In order to sign up, rider must meet ALL of below criteria: 

  • Ages 8-18
  • Have a disability
  • Able to walk without assistive device
  • Willing and able to wear a properly fitted helmet
  • Parents must remain at camp at all times 
  • Able to sidestep to both sides 
  • Able to attend all 5 days 
  • Maximum weight of 220 lbs 
  • Minimum inseams of 20″ (measure from floor while reader is wearing sneakers) 
  • Bring in own (approved) bike at at sessions 

For any questions please e-mail Tammy Goddard at tgoddard@paxtoncampus.org 

iCan Bike 2017

Futures Planning on Nov 16 – Medicaid Waiver Changes are Coming, Are You Ready?

Futures Planning – next workshop: 

Thursday, Nov 16; 10:00am-12pm

Medicaid Waiver Changes are Coming, Are You Ready?

Come learn about changes to the EDCD Waiver (name change and new services available) and the transition to Managed Care for EDCD and DD Waivers (which starts in Northern Virginia on December 1)

REGISTER HERE.

Workshop is FREE for Members of The Arc of Loudoun, *For information on becoming a member, CLICK HERE.

$10 for Non-Members, registration required.

LOCATION:  601 Catoctin Circle, NE, Leesburg, VA 20176

QUESTIONS: Contact Tammy Goddard: tgoddard@paxtoncampus.org

On the third Thursday of almost every month Tia Marsili, Director of Trusts for The Arc of NoVa Special Needs Trust Program,(SNT) and her guests present the tools to consider when developing a plan for the future to families, siblings, adults with disabilities, and others interested.

LOCATION: ALLY BUILDING
601 Catoctin Circle, NE, Leesburg, VA 20176

 

 

Past Topics:

January 19:   Housing Options: Loudoun, Fairfax and Prince William –  Jeannie Cummins, Senior Integrated Community Options Specialist, DBHDS; and Lorna Ballard, Community Residences

February 16:  Higher education – post secondary – options for higher functioning individuals (colleges with the best disability offices/services, George Mason’s program, vocational programs, community colleges) – Seb M. Prohn, Ph.D., Career Education Associate, Center on Transition Innovations, Rehabilitation Research & Training Center, Virginia Commonwealth UniversityBehavioral Supports (through adulthood)

March 23:  Workshop for beginning the Rep Payee, presented by Tammy Goddard and Eileen Shaffer of ALLY Advocacy Center.  Tammy has served as a rep payee for the last 5 years to a variety of clients, she can guide families who are interested in doing this for their family member when the time comes. Eileen will give an introduction to families about the rep payee process and will be discussing important topics such as rental agreements. 

April 20:   Update on Medicaid Waivers – Lucy Beadnell, Director of Advocacy, The Arc of Northern Virginia

May 18:  Special Needs Trust to include ABLE Accounts

Creating a Financial Roadmap for the Future: We will walk you through a process to document future security for your child. Participants will organize thoughts and information that encompass concepts such as daily schedules, likes and dislikes, plans for the future, and putting the financial means in place to accomplish these future dreams and goals.s

Update on Medicaid Waiver Reform: Learn about the different types of waivers and how they help individuals with disabilities receive community based services. Discussion of eligibility requirements, what it means to be on the waitlist, and how to start the process today.

Special Needs Trusts: We will walk you through the importance of planning for the future of your loved one with a disability, why trusts are important, and other critical services and programs that you should consider.

Developing the Next Generation of Advocates for Your Child

Social Security Benefits: Our speaker will help you navigate the complex system, including a discussion on SSI, SSDI and Medicaid

Drafting a Letter of Intent –  Free Interactive Writing Workshop – A Will or a Trust will not necessarily ensure that your wishes for your child are always carried out. A Letter of Intent is a way to have your voice heard when you are not there. Find out why you need a Letter of Intent and the purpose of this critical document when planning for your child’s future.

Legal Authority – we discussed the appointment of a guardian or conservator. We will present on different alternatives so you can make an informed decision for your loved one.

Taxes (What you can write off when you have a child with special needs)

Social Security: The Application and Appeal Process for SSI and SSDI.  – Comprehending the intricate web of public benefits available to people with disabilities is difficult. In this presentation, learn how and when to apply for adult disability (SSI and/or SSDI), what to do if you have to appeal a decision to deny benefits, and how to leverage your benefits once you start receiving them.

iCan Bike Spring Poker Run April 22

Paxton Campus has partnered with Leesburg Moose Lodge to host “iCan Bike” Spring Poker run on Saturday, 4/22. Funds will support iCan Bike Camp, a program that teaches children and adults with disabilities how to ride a two-wheel bicycle independently.

More information about iCan Bike HERE 

We hope you can join us!

50 Faces of The Arc- Lauren

Meet Lauren. She works at Maggie’s Closet (named after the founder of Paxton Campus’ daughter, Margaret) a non-profit store located on Paxton Campus that provides free clothing and accessories for families in need. After one year of volunteering, Lauren was given the opportunity to work part-time at Maggie’s Closet through STEP Up; a program of The Arc of Loudoun on Paxton Campus that teaches vocational skills to adults with disabilities. Maggie’s Closet accepts shoppers by appointment only and features all sizes of quality, seasonal clothing. Lauren recently began taking on more responsibility; answering phone calls, and scheduling shopping visits. She greets each shopper with a smile when they arrive for their appointments.

Lauren says working at ‘Maggie’s’ has been an amazing experience,

“I have a lot more confidence talking to people now and have become more independent. I’ve learned skills that I’ve never learned before!”

Skills such as answering the phone and interacting with customers were challenging for Lauren at first, but now she’s able to do both tasks easily. In fact, she’d love to do more public speaking. Lauren says,“I’d like to be on TV or the news. Advocating and being able to talk at The White House about Paxton would be my dream!” Lauren especially enjoys meeting all the families who shop at Maggie’s,“I love seeing them smiling. It makes me happy knowing that I’m bringing happiness to all of the people who are shopping.”

Learn more about Maggie’s Closet here: www.paxtoncampus.org/maggies-closet

 

 

Transition Series 2017: Canceled

Due to low registration, the Transition Series workshop is canceled. However, every month at our Futures Planning meeting we cover several of the same topics that would’ve been discussed at Transition Series. Anyone with a particular need is welcome to join the Futures Planning meetings and/or contact the ALLY Advocacy Directors for an individual consult, free of charge!
 
More info about Futures Planning here: http://www.paxtoncampus.org/futures-planning/

 

Paxton Campus will be holding its next TRANSITION SERIES for families with young adults (ages 14-22) who will soon be transitioning out of school. The seminars will have one track only, for parents (and/or guardians, caretakers, or adult siblings).  

**Attendance for both sessions is required for the parent/caretaker

This program is free for members of The Arc of Loudoun (click HERE to learn about membership) and $45 for non-members.

This 2-day workshop is a structured educational event designed to empower families and individuals with disabilities as they transition from school services to the maze of systems in “the real world.”  Each series provides educational programming in the areas of Medicaid Waivers, Social Security Insurance, Employment, Special Needs Trusts, legal authority, transportation, Law Enforcement Safety, LCPS Transition Services, Recreation, Social Relationships and Futures Planning for families with young adults with disabilities.

Last year’s program was a huge success… the parents/caretakers truly enjoyed the time they spent in the program.

Space is limited.  Click HERE for an Application.

Next Chapter Book Club

It’s 6:30 on Monday and chips, popcorn and water bottles are sprawled over a table in the back of Rust Library in the Story Time Room. About ten chairs are tucked in around the table, but more keep getting added as the night goes on. More members keep trickling in for the Next Chapter Book Club meeting.

IMG_7250 For those of you who don’t know, the Next Chapter Book Club (NCBC) offers the opportunities for people with cognitive or developmental disabilities to read and learn together, talk about books, and make friends in a relaxed community setting.

Our NCBC usually meets on the first and third Monday of every month at Rust Library.

Right now, we are reading WHITE FANG.whitefang

White Fang is a novel by Jack London about a half-dog/ half-wolf living in Canada during the 1890’s. We are on chapter 7 and everyone is enjoying the story so far.

As everyone starts arriving, we talk about our weekends and what book we would like to start next.

Some titles like Robin Hood, Robinson Crusoe and Swiss Family Robinson get thrown around. Every person is given the chance to suggest what he or she would like to read next. If you have any suggestions on what we should read next, let us know!

A little before 7, we dive into chapter 7.

First, we make sure everyone has a copy of the book and then we recap what happened last week for any member who missed the last meeting.The room grows quiet as the first reader begins. All you can hear is quiet crunching from popcorn being snacked on.
IMG_7253

Everyone’s head is buried in the book. Some follow a long word by word with their bookmark.

*page flip* and the story continues you. The reader of the story switches from person to person around the room, everyone bringing a new voice to the story.

Some quiet and clear. Some loud and excited.

The NCBC is a no pressure environment- every member has the chance to read if they would like to but no one has to read.

IMG_7261It is inspiring to see how many members take a turn reading. All of their friends encourage them to read and stay engaged in the story the entire time.

By the time we get to Chapter 11, it is almost 8 pm. Things are not looking good for White Fang. He is in the middle of a scary but exciting fight.

We are left on a cliffhanger. What will happen to White Fang?

We will find out TONIGHT at our NCBC meeting!

If you are interested in joining us, email Tammy at tgoddard@paxtoncampus.org! Anyone at ANY reading level is welcome to join the club!

Come hear what happens to White Fang tonight at the Rust Library from 6:30-8pm.

To learn more: http://www.paxtoncampus.org/book-club/